The day-to-day

This is why I have been gone for a while. I was diagnosed with CFS/ME in high school after 2 years of being generally unwell.

I am one of the lucky ones – I am not bedridden. I can carry on a reasonably normal life 90% of the time.

Most days, I can pretend to be a normal person – I work, study, clean my house, go out with friends.

But sometimes, I can’t. I want to do things, but I just do not have the energy. Sometimes, I have the energy but my brain doesn’t come to the party – I have stood in my kitchen and realised that even though I had the theoretical knowledge of how to make coffee, I had no idea in that moment how to actually go about it. I could not remember the process required to get out a coffee mug, boil the kettle, all the steps required just to make a simple cup of coffee.
That was a REALLY scary day – I thank my lucky stars that this has only happened 3 times, ever.

I often have trouble with words – when I get tired, my brain can’t get to the right word quick enough, and so it throws me whatever it can find.
Sometimes I’ll say “closet” instead of “coat”.
Sometimes I’ll say the name of something I can see, rather than what I mean to say.
And sometimes, I can’t even think of the word. I’ll just stand there, and try to mime out the word I want. I still know what I want to say, I just don’t have the words for it.
Occasionally, I’ll be fine with finding the correct words but stringing them into a spoken sentence is beyond me.

This is why I’ve been missing from this blog. I’ve had to count my spoons* and use them for things that let me try to be a normal human being, because I’ve been a little short recently. Emotion saps me of energy (thanks ASD!) and there’s been a lot of that in my life these past few months – and I’m feeling the effects of it now.

I miss blogging. I miss the “normal” life I’ve been able to live for the past 2 years (because I’ve managed my energy and health well). And I know I will be able to get back to that with time, but it’s going to take time. And I’m crazy impatient.

~K

* Visit But You Don’t Look Sick¬†for an explanation of Spoon Theory if you don’t know why I’m talking about spoons

 

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